I had my infusion this morning and I am so tired! I kept falling asleep on and off the whole day. I think I only ate once because I couldn't keep my eyes open. Today was the first day that I had IV Benadryl push instead of in a piggyback IV and I have to say that I think I felt it more. Most people don't need Benadryl for Herceptin or Perjeta but I get a crazy itching that I can't stand and the Benadryl helps. I'll take the itching and Benadryl over cancer any day. Today was also my first day back at the main infusion center at UCSF. I don't like it there. It doesn't feel as personal but they closed the overflow wing which is where I loved to go because they had only two patients to a room and it felt more intimate. The infusion center I went to today has 4 people to a room and it's so crowded and noisy. Plus, I was sitting next to a grumpy old man that was complaining about everything. He started yelling because someone answered their cell phone. She wasn...
Ugh, I've had a headache for 3 days in a row and I can't seem to get rid of it. It's getting to the point where I feel nauseous. I keep having to make myself eat at least once a day but it's so hard because I have no appetite. I start eating but then I have to stop because it makes me nauseous and sometimes even the thought of food makes me sick. You'd think between feeling nauseous, having no appetite and having serious stomach issues I'd be losing weight but I'm not. At least I'm not gaining any though. My weight has been holding steady for months. I do want to start going out for more walks though. I need some distraction. What I really need though is a stress free environment. My scan is getting closer and I'm getting more and more nervous. Plus, every time I think things are getting easier, things get worse. Two steps forward but then two steps back. I think I have to stop letting my guard down. Every time I do I just end up being the one hur...
I’ve been home from work for almost two weeks now and it has me thinking back on the last 15 months. It has been a long road and sometimes it’s hard to believe that it’s my life and not someone else’s. Nobody ever believes that they could ever get a diagnosis of cancer and I certainly didn’t believe it could ever be me. But I have learned that there is no prejudice when it comes to cancer. I’m only 32 years old and I have to deal with the uncertainty of living with an incurable disease. I live my life in 3 month increments from scan to scan. I’ve had relatively great scans since last November but any moment the ball can drop again and I’ll have to start the process of choosing a new treatment plan that comes with new side effects. Luckily the physical side effects that I have experienced so far since my diagnosis have been mild. When I was getting weekly chemo the worst side effects I experienced were peripheral neuropathy, muscle pain, fatigue and change in taste. I was lucky enough ...
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